Soon after her baby’s 6-month birthday, Wanda Gougis’ worst fears were confirmed. The doctor told her that her daughter, Juanita, had inherited what some other members of her family had – sickle cell anemia.
Instead of the normal cries for food or attention, Juanita cries out in pain. The infant faces repeated episodes of excruciating pain involving every joint and organ in the body.
The worst is that the mother has to stand by and watch her child go through this while having no treatment to offer. The medicines for sickle cell anemia that are given to adults have such horrible side effects that doctors do not want to treat children with them. So the future for this infant includes repeated pain crisis, stunted growth, frequent infections and many missed school days.
Sickle cell affects the structure of the hemoglobin in red blood cells by forming a sickle or crescent shape that has difficulty passing through small blood vessels. The disease occurs in about one in every 500 African-American births.
There are presently no completely safe and effective treatments for the 80,000 to 100,000 African-American people with the sickle...
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