More than six million people worldwide, including one million in the United States, live with Parkinson’s disease-a chronic, degenerative, neurological disorder that is characterized by symptoms that typically progress from mild tremors to significant physical incapacitation.
Despite modest advances in pharmaceutical and surgical therapies, there is no known cure for Parkinson’s. The best hope for finding one, say experts in the field, is through clinical trials. Therein lies the problem.
Even though almost all (more than 96 percent) of the physicians in the United States who treat people with Parkinson’s disease agree that clinical trials are necessary to find better treatments for the disease, the majority of physicians have never referred a patient to a clinical trial.
These are among the highlights of a recent survey commissioned by Advancing Parkinson’s Therapies (APT), a collaborative effort spearheaded by leading Parkinson’s organizations. The survey also found that, among Parkinson’s patients, 40 percent cite support groups and 27 percent cite other people with the disease as the most common sources of information...